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Understanding consent for organ donation

Consent is the permission given for something. This page outlines the steps we take to ensure that permission has been given for organ donation to go ahead.

How is consent for organ donation given?

Organ donation can only go ahead with your consent and/or the consent of your family

If you die in circumstances in which organ donation is possible, NHS specialist nurses will try to establish:

1. Your organ donation decision

The NHS Organ Donor Register is available 24 hours a day, 7 days a week and is checked by a specialist nurse prior to a donation conversation with your family to see if any donation decision had been recorded.

If you have not recorded an organ donation decision, the starting position for adults in England and Wales is that donation should go ahead.

There are different organ donation systems in place across different countries within the United Kingdom. Get information about the law where you are

Your family will always be asked for their views, and clinicians will never proceed if your family objects strongly.

2. The support of your family

Organ donation will always be discussed with your family if donation is a possibility. Based on the decision you have recorded on the NHS Organ Donor Register, a specialist nurse will work with your family to explore what you would have wanted to happen and help your family to honour that.

The best way to make sure your decision is honoured is to register it on the NHS Organ Donor Register and tell your family, or an appropriate person.

Your family will have the opportunity to provide any additional or more recent information about your decision, and this will always be respected.

If you have not recorded an organ donation decision, the specialist nurse will speak to your family about organ donation as a possibility. 

How is consent given for children?

If someone under the age of 18 dies in England, their parents would be approached about organ donation and given the opportunity to consent on their child’s behalf. Organ donation would only go ahead with the agreement of the family. 

If there was a decision recorded on the NHS Organ Donor Register, this information would be shared with the family. Anyone can register an organ donation decision at any age.

Get more information about the NHS Organ Donor Register

Is carrying an organ donor card a form of consent?

Carrying an organ donor card is a valid form of consent but it is possible that your donor card might not always available to specialist nurses trying to establish your decision.

For this reason, we would always recommend that you register your decision on the NHS Organ Donor Register and share this decision with your family.

Should I include organ donation in my will?

By the time your will is read it's likely to be far too late for you to become a donor.

The best way to ensure that what you want to happen is honoured after your death is to register your decision on the NHS Organ Donor Register, and share this with your family.

Which organs and tissue are involved?

When you register a decision to donate, you will be asked whether you want to donate some or all of your organs when you die. You can choose to donate your heart, lungs, kidneys, liver, corneas, pancreas, and small bowel. You also have opportunity to donate tissue.

By selecting to donate all your organs and tissue, you may be able to help up to nine people through organ donation, and even more through tissue donation. 

This information will be available to specialist nurses when they review your record and your decision around donating specific organs and tissue will always be respected.

The current system for organ donation in England does not cover rare or novel transplants such as limb, face or uterus donation. This kind of transplant is not routine and would require specific agreement from your family.

Can I change my mind?

Yes, you can change your mind at any time. If you have recorded an organ donation decision on the NHS Organ Donor Register and want to update your details, change or reaffirm your decision, you can complete the Amend your details form or call 0300 123 23 23.

Can someone make an organ donation decision for me?

If you don't want to make an organ donation decision yourself, or if you have specific instructions, you can appoint someone to make that decision for you.

If you die in circumstances where donation is possible, the person you nominate as your representative will be asked if your organs should be donated.

The nominated representative registration process requires physical signatures from you, your nominated representative(s) and a witness.

Nominate a representative now

What if I do not have a family to support my decision?

If organ donation is a possibility, medical staff will do everything they can to find family members. If no family members are available, a friend of long standing can be consulted. The Human Tissue Authority (HTA) have set out Codes of Practice, which include a list of those who should be approached about organ donation. This starts with your family, then includes friends and care workers who will have known you and may be able to speak for you.

Organ donation would not go ahead if the NHS cannot contact someone who knew you well, even if you have registered a decision to donate on the NHS Organ Donor Register. The NHS has a duty to consider the safety of any organs for transplant. This is why speaking to the family, or someone else appropriate, about medical and lifestyle history is so important.

What if my family object to my organ donation decision?

If your family, or those closest to you, object to donation even when you have given your explicit permission (either by telling relatives, friends or clinical staff, by joining the NHS Organ Donor Register or by carrying a donor card) healthcare professionals will discuss the matter sensitively with them.

They will be encouraged to accept your decision and it will be made clear that they do not have the legal right to veto or overrule your decision. There may, nevertheless, be cases where it would be inappropriate for donation to go ahead if donation would cause distress to your family.

Can I donate my organs or body to medical research?

You can donate some organs and tissues for research purposes if other organs and tissues are taken for transplantation. We can only use your organs and tissue for research after you die if they are not suitable for transplant and we get permission from you or your family.

Donating your whole body for medical research

To find out more information about whole body donation for research purposes please contact the appropriate organisation for where you live.

Whole bodies are not accepted for teaching purposes if organs have been donated or if there has been a post-mortem examination.

England, Wales and Northern Ireland

Get the latest advice and guidance from the Human Tissue Authority

Scotland

Get the latest advice and guidance from the Scottish Government



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